Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Sunday, March 24, 2013

Really?! From a handicapped person?!

So Matthew made it home tonight to Oklahoma with his parents.  When he got there, he wanted to check and see where my car was so he bleeped my keychain and didn't hear a sound.  He looked up and down the street and didn't see it anywhere. 

My car was missing.

So he called the police and they checked the impounds and it was nowhere to be seen.  Someone stole my car.  Someone stole my car with a handicapped tag.  Someone stole my car with a handicapped tag WHILE I was having a kidney transplant.  

I mean, this really is the best time for this to happen to me I guess.  I mean if it had happened three months ago, it would have really gotten to me I think, what with all the stress of not knowing if a transplant was happening.  And if it happened in six months when I felt healthy I would have really been angry because it would be an isolated incident that would really suck since everything else was going so well in my life.  Now, I feel like, "OK, but at least I have a kidney."  I mean, talk about putting things in perspective.  I feel invincible right now. 

Steal my car??  Fine!  I just had a kidney tranplant, Sucka!  Have fun with all the extra phosphorus binders on the floor and the seats of my super posh '08 Honda Fit that were left behind.  I am sure you will enjoy them when you think you might be taking something fun like painkillers.  Joke's on you.  Those pills are terrible for healthy people.  

Asshat.


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