Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Monday, March 25, 2013

Not stolen, but..

My car was impounded.  It actually makes me more angry than if it were stolen.  I know this has nothing to do with medical stuff or pin up stuff, but I still have to vent.

I have been parking my car on the streets of Oklahoma City for the past year with no problem because of my handicapped tag.  I don't have to pay for metered spots because handicapped people park for free.  But while I was being cut open in Iowa, they decided to enforce a rule that stated that you can park for free, but only for two hours at a time.  This means that I would have to move my car every two hours to park on the street.  No my apartment doesn't offer parking.  

Again, I had kidney failure.  Getting to my car every two hours is not an option, and the nearest parking garage is four blocks away.  The whole point of having a handicapped tag is that I need it to park close to my home.  Four blocks is not possible on some days for me.  I need easy access to my home.  

So we paid 420 dollars to get my car out of the impound and had four parking tickets to pay as well.   I am not sure who to talk to about this.  There must be someone who can help me.  

In other news, Matthew and I are selling our house in Norman.  We love living in the city and upkeep on the house has been difficult with all the health stuff.  The good news is we have someone already interested after being on the market for two weeks.  The bad news is we discovered we have termites in our garage and we have to treat those too.  The estimate was $800.  I just feel like this week has started out pretty poorly. 

I would say it can only go up from here, but tomorrow I am having a doctor yank a tube out of my urethra so.....

I try to never say that things couldn't be worse.  Things can ALWAYS be worse.  If there is anything anyone has taken from this blog at all, I would wish it to be that.  No matter how sucky your week has been, or what trauma you might have suffered big or small, it really and truly could be so much worse.  And you never know, someone really close to you who looks strong and put together could be falling apart on the inside.  I wear a mask all the time.  I call it my "What disease?" mask.  It is very important to me to wear it.  No one wants to hang around a downer.  And if I dwell on all the things wrong with me it would only make me feel worse. 

So tomorrow I am having a brief procedure that I am petrified to experience.  I don't know exactly how it will go, but I know i will survive, and I know I will get to see Matthew soon after.  And my car is safe.  And the termites can be treated.  And I am going to be healthy again.  That sounds pretty damned lucky to me.  Forget lucky, it's a friggin' miracle compared to my life six months ago.  

So all in all, I think I am a pretty lucky girl. 

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