Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Wednesday, March 13, 2013

A look back: Transplant Day 4

We tried to eat breakfast together but it didn't work out exactly that day.  The doctors told me my creatinine was 1.2!  And that is an awesome number!  I couldn't believe it got that low so fast!

We were still really bloated and uncomfortable.  And on day 4 our clicky pain killers were taken away. I was fine with this because it meant that I might relieve some of the bloated constipation issues that come with every surgery.  It's a side effect  that gets better when you can get off the drugs.  And to me, the pain isn't as bad as the constipation.  I hate being bloated.  A lot.  But of course by now I have discovered that if you just pull the compression socks up a little, you can turn them into thigh highs.  This was a good discovery for me.


Matthew and I took our walks together and sat for longer in our rooms.  Sitting up was getting easier for both of us.  Matthew was starting to function better.  His creatinine had crept up to 1.5 :(  My mom was staying in my room every night on a pull out couch.  It was great for us because she prefers to be there the whole time, and she is so helpful to me.  I was so glad to have her there.

Matthew came over to see me at one point and we got in bed together.  I just wanted him closer.  We are experienced at sharing a hospital bed, just never when we were both sick.   He had developed a fever so the doctors wanted to keep him an extra day.

I didn't mind.


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