Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Tuesday, July 9, 2013

No more donations

I am not sure if anyone noticed, but I recently removed the paypal donation button on the right of this page.  

Matthew and I want to thank everyone who donated to our medical expenses.  It was so helpful, we cannot express.  Your donations have helped us to travel to and from Iowa and Chicago, purchase medicines, pay our copays and deductibles, and generally feel very loved and supported throughout our whole ordeal.  We can't thank you enough.

From now on, if you feel you have extra money you want to donate to someone, find another sick friend and buy them dinner.  They appreciate it, even if they don't have much of an appetite.  Being sick feels very isolating, and the best think you can do as a friend to a sick person is make sure they know they aren't disappearing.  Thanks to all of you, I felt very visible.  That is going to be present in the play that I am writing. 

You have probably noticed that I don't mention religion or God much in this blog.  Some find it outlandish that I am not religious after all that I have been through.  But I truly believe in the power and love of people.  Humans.  I am a humanist.  Instead of thanking a God for giving me my life back, I thank the surgeons who went to school all their lives to be the best at what they do and for taking my case on.  I thank my husband who decided to risk a lot to give a part of himself to make me whole.  I thank all of you, atheists and deists alike, who have supported and loved us throughout this whole process and continue to offer support in any shape or form.  I believe it was up to people to make those choices, and I feel very connected to them.  

If I have to thank a God for the good times, that means I also have to be exasperated and angered about the years and years of bad stuff he sent my way.  I am not interested in that kind of negativity.  If he works through people, then great.  I see those people and I spend my energy thanking them directly.  There have been some great things that have come out of this illness, and to me it is the connections to people across the world that I cherish the most.

We all get through the tough times any way we can.  I don't judge anyone for loving and needing their religions.  Human interaction, chemistry, and love is my religion.  I base my career on it, and my life as well.  So thank you all for being here.


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