Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Monday, July 8, 2013

My hair is falling out!

About three months after my last transplant, I started losing hair by the fistfuls.  I would be sitting in class at VCU and there would be long strands of hair all around me on the floor.  It was embarrassing.  It grew back of course.  I never went bald, just thinned.  It freaked me out though.

It is happening again.  Last time we determined it was a long term reaction to anesthesia.  I had forgotten it.  I have a sort of tight relationship with my hair, and I don't like seeing it fall out.  I'm not 25 anymore so I hope it can grow back again after this.  My body has been through a bit, so I have to expect things like this to happen.  I might even have to.......CUT IT.  *gasp*

There are also some pictures that I haven't posted yet and I am working on it.  They are on a CD and I got this new Windows laptop that doesn't have a CD drive.  So I have to figure out how to get the pictures on here.  I will get those though.  They are a pretty good benchmark of what I look like now.  I am on it. 

But on a brighter note..The University of Iowa published an article about me and this blog!  If you haven't read it, I added it to the links on the above right.  But it's here too:

http://www.uihealthcare.org/transplant/tonia-kidney/

I love it.  It's a great article and it captures a lot of personal things about me.  


Matthew and I are traveling back to Iowa in August to see the doctors again and do an in person interview on camera and see what happens.  Super exciting!

 



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