Lucky for me. It saved my life. That bag costs more than my car. Ouch.
Hospital Me THEN (2012)
Dance like no one is watching!
Hospital me NOW (2015)
Dance like EVERYONE'S watching
Post Transplant-1 Year (March 2014)
Mi Amor Studio
Pre Dialysis Pinup Shoot (2012)
Dynamite Dames
Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)
Non-Pinup Me Now (2015)
This girl has four kidneys
Saturday, December 31, 2011
Soliris to the rescue!!
This was my first dose of Soliris, the only drug that treats aHUS. It is, according to Forbes Magazine, the most expensive drug in the world. It normally costs about $500,000 dollars a year. But I need $750,000 worth. It was only FDA approved October of 2011, just in time for me to get it in December.
Lucky for me. It saved my life. That bag costs more than my car. Ouch.
Lucky for me. It saved my life. That bag costs more than my car. Ouch.
Sunday, December 25, 2011
The Diagnosis
These pictures were taken during the hospital visit they diagnosed me with aHUS. It was such a relief to have a real reason for such a difficult transplant experience.
My hemoglobin was at a 6.1 in these pictures. That means half of my blood was missing.
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