Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Wednesday, March 20, 2013

Recovery at Nonna's

So it has been a little while since I posted, mostly because there isn't much to say.  Tomorrow will be two weeks since the transplant and we are doing really well.  Matthew still takes pain pills, but not nearly as many as before.  Three days ago I started sleeping on my stomach at night, which hasn't been that painful.  I look incredibly pregnant, but hopefully that will change as time goes on. 
 
So as you can see, my belly is distended quite a bit.  It is worst when I eat.  Mostly it is the extra fluid and swollen tissue in my belly.  Yes, it is uncomfortable but what can I do?  Hopefully it will go down soon.  Small price to pay as far as I am concerned.  I think I look kinda cute pregnant.  And let's face it, this is the most pregnant I will ever look ever.  Ever.
 
We are a little stir crazy in my grandmother's house, but it has been a good visit.  We really appreciate both of our parents being here to support.  Matthew's mother has gotten really sick for about two weeks now, so we have had to try to stay away from her unfortunately. 
 
My numbers have come back from blood tests I have been getting, and they look really good.  My creatinine has leveled out at about 1.1 and I am so happy with that.  I am still a little anemic, but it is getting better.  I can stand up straight now, and Matthew and I are moving a little faster. 
 
On Saturday, Matthew will be leaving with his parents to drive back to Oklahoma.  He wants to teach on Monday.  He misses his students.  I don't blame him.  Mom and I are leaving for Iowa on Tuesday.  The dreaded procedure is scheduled for Wednesday morning bright and early.  The word on the sedatives?  The transplant team has approved the use of them, but the urology team has to approve it now.  Keep your fingers crossed.
 
It has been amazing getting to eat whatever the hell I feel like eating.  I drink milk, eat cheese, drink TONS of water and don't limit myself at all!  Its awesome!  I know I will gain some weight, but whatever.  I have time to equalize after I get back home.  Nonna's food is just too good to turn down.
We have also had an amazing amount of visitors while we have been here.   We even had to turn some people away because we get too tired sometimes.  But it has been awesome seeing everyone. 
 
We are looking forward to going home and getting back to normal, and we miss our pets a LOT.  But we are thankful things are going so well and can't wait to see our Oklahoma friends. 
 

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