Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Wednesday, March 13, 2013

A look back: Transplant Day 3

So on Saturday, things started getting painful.  My numbers were fantastic.  My creatinine was down to 3.2 which is amazing for day 3!  I was allowed to eat food, so I ordered breakfast and Matthew came over to eat with me.  The food was decent.  Much much better than OU I have to say.

I didn't eat a lot, but after I put food in my stomach it ballooned out to looking 5 months pregnant.  Bloated and uncomfortable, things were pretty miserable.  They keep asking you about poop too.  It's really important.  Everyone wants to know about your poop.  Most of the pills you take are laxatives, stool softeners and suppositories.  There is no privacy in the hospital.  You just have to be OK with that.  I mean, there is a jug of urine attached to a tube attached to your bladder that people move around all the time.

Oh yeah!  Let me tell you about the catheter.  I hate it.  It is great on day 1 when you can't get up, but by day 3 it is agony.  The tube automatically takes pee out of your bladder, which is nice, but then it backs up in the tube and if someone moves it above your bladder the urine glubs back into you!  You can feel the bubbles in your bladder.  It sucks.  It just sucks.  And it gives me the willies.

So we were really uncomfortable on day 3.  But our spirits were high and we were appreciating the time we had together.


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