Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Sunday, August 18, 2013

The fog is lifting!

So I realized that I developed a sort of depression for the past few months, and I just now am getting out of it.  I started getting back into some of my panic attacks I used to have, so I started on some medication to help with them. Simultaneously my mood almost instantly lifted.  I didn't think of myself as depressed, but now that I am past it I feel much better.

School starts next week and I couldn't be more excited.  The show has a great shape and now I need actors to make it come to life.  I picked the title, "Dancing in the Storm".  I got this from a quote I was told from Billie Boston, a former colleague of mine from OCU.  When she retired after more than 40 years of teaching (without any kind of goodbye or thank you for your dedication party from the department, ahem ahem.) she gave me a framed quote that said, "It isn't about waiting for the storm to pass, it's about learning to dance in the rain."  She didn't know how much I needed to hear that.  I was sick as hell, and going through the worst time at work.  Her words really touched me and I have tried to live my life by that motto.  So the play is based on this quote.

So despite things going much better in my mind, I have to report that my hair is falling out even worse than before.  It has thinned so much I don't know what to do with it.  I even looked into wigs.  My sister and I used to make a joke from the book and movie, "Little Women".  When Meg's hair gets burned by a curling iron, her little sister Amy says, "Oh No!  Your one beauty!"  I hate that my hair is falling out.  Again, dialysis was worse.  But I just miss my hair.

Ok, enough negative.  I am getting back to theatre!  And there is a show in the makings for January too!  Matthew and I will be performing in a two-person show together!  We are really excited about it!  I haven't ever acted with him before, can you believe it?  It should be really fun.

Hm...Dancing in the storm...do I smell a future tattoo?


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