Still waiting...

So here is what is happening with this "simple" blood pressure test we have been waiting on.  First of all, no one in Oklahoma seemed to know what it was.  Then we were referred to several different places that said they could get one but they all fell through for one reason or another.  Finally, our coordinator told us that Oklahoma Transplant could get one and we should get a call from a woman named Cindy.  Another week went by and no call.  Turns out Cindy was trying to get paperwork approved and needed signatures, and the fax machine broke one day.  I called Cindy myself and she told me the machine was going to come from a woman named Melanie in pediatric nephrology.  But that I shouldn't hold my breath.  Last time she issued this test it took more than a month to get, use and get results back.  I guess she is the only person in Oklahoma that has these tests and there is a huge waiting list for it.  

I am going to call Melanie and try to give her my sob story.  That I am waiting on a kidney transplant and this is the very last test before we get approved.  And every day we wait is another day using a very dangerous chest port that is prone to infections and blood clots.  And I have a life that is waiting on this test.  And I just want to move forward in some way.  And we are literally sitting here waiting for this one damn test while I am stuck on a machine four times a week sleeping next to the kidney that will eventually make all of this go away and bring me out of this dark and lonely time.  I don't know if it will work, because I suppose all the other people waiting have sob stories too.  

But a month to wait pushes this transplant to end of March and even April.  So much for temporary dialysis.

I just wish something could go smoothly.