Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Tuesday, December 24, 2013

Showgirls and...what was I talking about?

Great new things happening!

I have recently hooked up (in a business kind of way) with my good friend Lynn Crowe, who owns Teaze Dance and Fitness.  It is the pole dancing studio I have been learning from on and off for the last three years.  Honestly, since I first went to their first anniversary party I have wanted to be really involved with the studio, but I just kept getting sick.  I took classes there for about six months and even got to be a solid level 2 "Pole Fox".  Level three was really hard because I just kept bruising so badly from inverting I had to stop.  I had no idea I had a blood disease at the time, so that explained a lot!

But I have recently agreed to be the Assistant Director for the Oklahoma Showgirls.  The Showgirls are a dance team that perform at events around Oklahoma City dressed as all kinds of cute and beautiful things.  They are a really talented and fun group of ladies, and I am really excited to be working with them!  I even went to a last minute event dressed in a Naughty Santa Baby type costume and it was really fun. 


So along with that, I have started up with classes again.  I have had to start and stop so many times, and I just miss it.  So this week I went to two classes.  I am sore and that feels awesome.  I even think my body will hold up past level 3 this time!  What I would give to be a "Pole Minx!"

This week has been difficult for my memory issues, and I have been really starting to wonder about it.  Matthew tries not to get frustrated, but at least once a day he has to tell me something I should remember that I don't.  We missed a breakfast yesterday morning with friends because he didn't put it in his calendar, but it was the first time I had heard we were doing it.  Dr. George, my blood specialist that helped diagnose my condition, has asked me to attend an occupational therapy appointment to see if they can offer me tools to cope with it.  So until I get to that neurologist, I will have to really be diligent with putting things in my phone to remind me what I have to do.  If you are someone that experienced my forgetting something we talked about, I apologize.  I am diligently working on it.




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