This weekend I made a return to the stage. The last time I was in a show was the summer of 2009, before I got sick. I played two relatively small roles. The last large role was in 2006 as Lala in Last Night of Ballyhoo. Acting in Oklahoma had become sparse for a woman who looks 20 but was nearly 30.
Last night I had the privilege of performing in a one act called Sleepwalkers with Joe Dougherty as my partner. The show was a modern dance performance called, What's Love Got To Do With It? Joe had played Matthew in Dancing in the Storm, ironically. When I signed on to the project I didn't know how intimate and physical it was going to be, but it evolved and we made it more realistic than it had ever been performed.
Also, we were the first actors to ever memorize the script. It was originally performed in the 60's at OU. The playwright, Skip Largent (who I met last night at the performance) updated it throughout the years. It is the single most difficult script I have ever memorized. It reads as a poem, and the lines overlap as we finish each other sentences. So the partners are completely dependent on each other. If one of us got lost, the other did too. It was a fantastic exercise in partnering and trust.
I am sorry we only had two performances, because I think shows hit their stride after the second performance. Last night felt great, and I am sad it is already over.
My body cooperated with me for the first time I can remember. It stayed healthy and strong, even under stress. My partner caught a cold that I didn't catch, even though we were kissing all week. I think I am actually starting to develop a trust with my body I have never owned before. I became so used to expecting it to fail miserably when it came down to something I really wanted to do. My illness has prevented me from performing, teaching, directing, and even from attending weddings, reunions, and funerals. It just might be that I am beginning expect success instead of body betrayal. That, to me, is the most amazing part of all of this.
This is only the beginning. I see myself coming back to life, and I am beginning to let go of all of the struggles of the past, while remaining optimistic of the future. Not just optimistic, excited and freaking pumped!
My frustrating and amazing journey struggling with Atypical Hemolytic Uremic Syndrome (aHUS) and Kidney Failure.
Why this blog?
Welcome! Thank you for visiting my blog!
This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.
My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.
Watch our story here:
https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be
~ Tonia
I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!
This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.
My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.
Watch our story here:
https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be
~ Tonia
I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!
Hospital Me THEN (2012)
Hospital me NOW (2015)
Post Transplant-1 Year (March 2014)
Pre Dialysis Pinup Shoot (2012)
Mid Dialysis Boudoir (March 2013)
Non-Pinup Me Now (2015)
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