The first week went as smooth as you might imagine. I demanded we perform everything outpatient so I wouldn't have to be admitted overnight and miss my first night of Macbeth rehearsal. It was more work for my doctor, as in more phone calls, but I got to sleep in my own bed each night and still go to rehearsal.The plasmapheresis went as well as you imagine. It leaves you shaky and weak. and the chemo injection site hurt horribly. I couldn't sleep because of the pain in my arm. I didn't learn until week four that it was possible to be given intravenously to avoid the pain and bruising. Of course...amateurs.
After my first two treatments, it was revealed to me we were doing this for FOUR weeks, not one. When I confronted my doctor with this information, he denied ever saying it would be one week. But I reminded him of the temporary groin port he had wanted me to get that would have only lasted one week, and he confessed the groin port would have been a mistake. It just goes to show you, kids, QUESTION EVERYTHING. Because they aren't thinking of everything, and the numbers are most important. Your convenience isn't always the first priority even if that means putting you under the knife more often sometimes.
I also stopped leaving the apartment for all other occasions in order to avoid contact with other people and hence, infections. If I did venture out, I had to wear a mask and gloves.
But Matthew and I kept optimistic about the progress, despite the fatigue and nausea. It was all worth it to save Apollo. He is the most important thing, and the light at the end of this tunnel.
Meanwhile I got pictures back from a shoot I did with Photographer, Ryan West, before the surgery. I love them, and they were really fun to shoot! Yes, that is my wedding dress, and it is so much cleaner now! No one ever suggests jumping in a pool to brighten it up, but it really works! :)
Photos by Ryan West Photography.
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