Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Wednesday, October 2, 2013

Opening Night

It is late.  I just got home from our second and last day in the space our show will go up in tomorrow.  

It's beautiful.  The show is beautiful.  I find myself watching and forgetting to take notes sometimes because I can't believe it is finished.  I remember when I wrote the very first piece for this show, the transplant scene.  I choreographed it while I was waiting for the phone call from the Iowa doctors to tell me we could go ahead with Matthew's kidney.  I would play the song over and over and imagine how overwhelming it would feel to get the go ahead call.  Every time I listened to the song I cried.  I couldn't help it.  I even tried describing it to a couple of students once and realized there were tears in my eyes as I was telling them what was in my head.  I imagined how amazing it would be to be healthy enough to actually direct that scene after living it. 

So you could imagine this show is the most personal thing I have ever created.  And the ensemble..

Tonight the ensemble surprised me.  We hadn't choreographed the curtain call yet, and we had just gotten through the last scene.  It went to black out and when the lights came up, the entire cast was onstage.  They had choreographed their own mini movement piece with Erin and Aly while I was out of town last weekend.  I can't even describe it because just like movement I can't do it justice.  All I can say is that it was beautiful, I was crying like a baby, and it took my breath away for quite some time.

So of course I adapted their piece into the curtain call.  I love it.  It's half theirs, half mine.  Ok, mostly theirs.  But it's great.  

I don't have words to express to them how grateful I am, but words never were my strongest suit.  I have loved watching them grow in this process.  That's always my favorite part of any show.  This one is special though.  The choreography speaks for itself, and all I can do now is hand the show over and step back.  Opening night is the saddest and most beautiful part to me.   Suddenly my job is finished and I don't get to play anymore, but at the same time I get to watch the actors experience sharing all their hard work with the audience.   It's the beginning and the end, and I love and hate it. 

So tomorrow we find out what the rest of the world thinks of Dancing in the Storm.  No matter what, this has been one of the most rewarding shows to work on for me.  I am ready to share it.  With this production I send any negative lingering feelings I have left from my illness into the universe to transform into nothing but beauty, grace, and of course, 

movement.

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