On our own!

My mom left to go back home yesterday and Matthew and I are on our own now.  Yesterday he went to work from noon until 6pm and we wasn't totally wasted by the end of the day!  I drove him down and picked him up too.  So the only thing that is difficult is carrying heavy things, but we are getting creative about that.  Garbage can be put into 5 pound bags and carried down more often.  Laundry is tricky but we are managing.  Sabrina is the heaviest thing we have to lift and I have a creative way of getting her in the car now (she hates getting into cars).

So things are slowly getting back to a routine.  I wore heels yesterday, my belly has lost some of the swell already, I am able to walk Sabrina fairly long distances, and I am fitting into my largest jeans comfortably.  I have lost about four pounds since transplant but I don't think I will go back to the 115 I was before.  I am just so darned hungry all the time.  I know the steroids are influencing me but it feels as if I haven't eaten in years, and I have no ability to stop eating things I never craved before, like chocolate!  I hate eating chocolate!  I have never craved it ever.  I always thought it wasn't worth the calories and now it's like an addiction.  I think Matthew's kidney is making me crave sweet things.  I always favored salt before. 

Other than that, my numbers are still looking good.  My creatinine went up a little, but not to a dangerous level.  I think I just need to drink more water, and I have no problem with that.  My scars are completely healed and now all I have to do is get my blood drawn once a week and get my Soliris infusions every two weeks. 

I am also writing a play about all of this.  I hope to put it up in the next year or two.  I have a lot of it hashed out already, but it will be a pretty large project and I don't know if I can get a space to hold it at OU.  I am excited about it though, and I also found out I will be directing a show in the fall.  It will be in a small space, or even a found space, so I can't do the show I started writing.  A former student of mine, Erin Crossley (formerly Erin Stanley), is going to help me write a new piece for the fall.  She has a fantastic eye for movement and has written some of her own work as well.  It will just be so amazing to finally have some output of creative energy for the first time in a year. 

I find that I am impatient to get back to working out.  It hasn't even been four weeks and I want to go back to dance classes.  I am starting to do some mild abdominal exercises today.  I know that if I jump on this pole in my apartment I could tear something and recovery would be delayed.  But it is so tempting.  Like Matthew says, "Can't keep Baby off the pole."

Also, I am lining up my post transplant photo shoot.  Coming soon. :)