Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Saturday, November 17, 2012

Government Moocher


I have been going through my diary entries while going through the worst of dialysis and I found this gem.  I don't recall writing it even though it was just over a month ago.  Kidney brain makes everything foggy, and my memory of the last six months to a year is paltry at best.  Nevertheless it is interesting to me that this came out at a time I was feeling so poorly.  At this time I was throwing up almost daily from starting dialysis, and I was in a wheelchair whenever I left the house.  Some people might remember the very end of this rant was posted on Facebook as a simple status.  This was the rant that came before it.

November 17th, 2012

Three times a week I spend five hours of my day sitting in a building that is full of people like me.  “Moochers” that are quite obviously the bottom class of society.  These people are not as lucky as I am.  They don’t have a husband who has insurance with his job, and they don’t have the ability to pay for an extra spousal plan.  Many of them aren’t childless like me.  They don’t have cars or expendable income.  Most of them don’t have family that takes care of them, and they spend so much time in hospitals they don’t have time to make friends.  They aren’t waiting for a transplant like me.  On behalf of them and myself I just want to say thank you.  Thank you America for choosing to spend the ridiculous amount of money it takes in a year to keep us alive.    I am sorry we have so much debt and it aches me to know that I am a cause of so much of it.  Thank you for caring to increase funding to our medical system to allow the technology that has so obviously grown leaps and bounds in the last 7 years since I was on dialysis.  We aren’t ungrateful, we are just sick.  So please excuse us for not knowing more about what is happening over seas while we fight for our lives.  It takes effort to stay alive for some of us, and we would much rather be home complaining about our jobs and the state of the economy.  But when you are as sick as we are it goes 

1)Live.
2)Everything else. 

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