Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Saturday, December 29, 2012

Dialy-stress

Last night was rough.  Matthew and I did a treatment of dialysis, and everything was going fine.  We were just finishing up rinsing my blood back from the machine with saline when suddenly my heart started beating like crazy.  It felt absolutely insane and out of control.  It was like my hear thought I was sprinting but I was lying down.  My heart rate went from 80 to 140 in about five seconds, and my blood pressure also went from 128/93 to 175/115.

We sort of waited it out, holding the phone close just in case we needed to call 911.  I have never had heart issues before, so I was terrified I was having a heart attack.  But a couple minutes later my heart slowly started slowing down, and my blood pressure went down just enough for us to think it passed.  

We had studied every single situation that could happen in our training, but nothing like this ever came up.  We are afraid that now something could be wrong with my heart.  

As if that wasn't enough, after we finished up, my cat was yowling from the other room and pacing around the apartment.  When I watched her I noticed she was squatting over her litter box and not peeing.  We quickly ran to the computer to look up cat symptoms.  Everything we read said possible impacted bladder.  Emergency vet.  

We took the Baby Kitty to the vet, already shaken from what happened with my heart earlier.  It turned out she probably had a urinary track infection, but they kept her overnight.  She's a ten year old cat and I haven't had her go to the vet in 7 years.  She has been the only one in this house that seems to be perfectly healthy.  She's really my cat, and I would be heartbroken if anything happened to her.  We don't have kids.  Our pets are our kids.

1 comment:

  1. Update: The baby kitty has a Urinary Track Infection, and despite still being unhappy, she will be just fine.

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