My frustrating and amazing journey struggling with Atypical Hemolytic Uremic Syndrome (aHUS) and Kidney Failure.
Why this blog?
Welcome! Thank you for visiting my blog!
This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.
My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.
I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!
Hospital Me THEN (2012)
Dance like no one is watching!
Hospital me NOW (2015)
Dance like EVERYONE'S watching
Post Transplant-1 Year (March 2014)
Mi Amor Studio
Pre Dialysis Pinup Shoot (2012)
Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)
Non-Pinup Me Now (2015)
This girl has four kidneys
Monday, October 7, 2013
Some Show Pictures
This was the poster we made for Facebook. I love it.
Pictures I couldn't put on Facebook, but they belong here.
Look how gorgeous Chandler Ryan is, chest port and all.
Pretty darned close, I think.
This is one of my favorites. We called it the Krishna.