Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be

~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Monday, December 28, 2015

Pinup Infusions for 2015!







I have decided to do something fun for my infusions this year.  Since I have no choice but to be at my clinic every two weeks, I want to make it something to look forward to for myself.  I am dressing in Pinup clothing and hair and doing mini photo shoots to boost my moods.  Hope you enjoy!


 




So far, it's really made the infusions something to look forward to, and I'm excited to keep this up all year!  If you have pinup ideas you want to see me try, let me know!

 
This above
image will never EVER happen in reality. Ever.







I think the funniest thing about this shoot was that everyone thought I had actually brought my taxes to the infusion.  That I carry my taxes in a huge clown sized folder that says TAXES. lol.





These next two are supposed to say 5/27/15.  Oops.






In honor of all the traveling I have been doing this year:






















This was merely two hours before writhing in pain and emergency dialysis.
 





 This book was published in 1940. It was a gift from my mother in law. :)









 This was a complicated ten second sprint from hitting the button on my phone to getting into this position.

It's pretty entertaining to the other patients. :)





 



 















Thank you for following this year! Stay tuned for 2016 infusion photos!


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9 comments:

  1. محمد الديبNovember 16, 2015 at 10:15 PM

    hello tonia ilove you >> my name mohamed mostafa from egypt 33 years i am patient of kidney15 years dialysis and kidney transplant thank you for this blog info ,This It's best to participate in a contest for among the finest blogs on the web. I will suggest this web site ,shared this with my friends and my website http://www.kidneymy.com/

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    Replies
    1. UnknownNovember 16, 2015 at 10:55 PM

      Thank you so much! And thank you for sharing it! I'm glad you got a transplant.

      I'll check out your website too! ��

      Delete
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