Why this blog?

Welcome! Thank you for visiting my blog!

This is my medical and recreational blogsite. Some of the entries on this blog are honest and quite vulnerable, as I wrote them at my lowest point. I try to keep a positive outlook on life, because no one wants to hang out with a downer, including me. Writing these entries has allowed me to see the world through a beneficial filter that allows me to appreciate every moment I have been able to experience in my life, even the difficult ones.

My husband Matthew and I LIVE when we can. I mean we suck the juice out of life, and we aren't ashamed of that outlook. It makes the bad times ok somehow because we took advantage when we were able. The pictures on this blog are part of that. I take pretty pictures of my sick body to boost my self esteem when I am having a difficult time seeing myself as a woman instead of a sick person. It is how I cope with my illness, and no one gets to judge how you survive your difficulties. So live on, and feed your souls.

Watch our story here:

https://www.youtube.com/watch?v=mG_mrDJ10LM&feature=youtu.be


~ Tonia

I have decided to relaunch my Facebook Page, The Beauty in Illness. Along with the help of two other rare patient advocates, we are hoping to include artistic stories of struggle and perseverence through creative ways. Please check us out and let us know if you would like to contribute!




Hospital Me THEN (2012)

Hospital Me THEN (2012)
Dance like no one is watching!

Hospital me NOW (2015)

Hospital me NOW (2015)
Dance like EVERYONE'S watching

Post Transplant-1 Year (March 2014)

Post Transplant-1 Year (March 2014)
Mi Amor Studio

Pre Dialysis Pinup Shoot (2012)

Pre Dialysis Pinup Shoot (2012)
Dynamite Dames

Mid Dialysis Boudoir (March 2013)

Mid Dialysis Boudoir (March 2013)
100 pounds, and a week from transplant, chest tube tucked into bra like a lady. ;)

Non-Pinup Me Now (2015)

Non-Pinup Me Now (2015)
This girl has four kidneys

Wednesday, January 9, 2013

Iowa Stubborn

We had a full day at the University of Iowa.

Matthew went through his donor evaluation which consisted of blood labs, a chest x-ray, a CT scan, a 24 hour urine test, an EKG, a psychologist evaluation, a kidney doctor evaluation, a surgeon evaluation, and being asked about 20 times if he realized what he was about to do.  Of course, they had me leave the room for a few appointments to make sure I'm not coercing him in any way.

All I had to do was meet with my nephrologist and transplant surgeon, and then I had to get a few labs drawn.  It was strange watching Matthew go through all the stuff I usually do.  I forgot that part of transplantation.  You feel so helpless as the recipient (and a little guilty).  I mean, I am used to being poked and prodded, but I hate that someone healthy has to do it because of me.  He also had to fast for about 16 hours, and that is the worst.

But we find out tomorrow if the crossmatch is negative.  This would mean that my cells don't attack his when they put them together in a petree dish.  In a week we find out about the antibodies.  Hopefully we get a good phone call tomorrow.

Can I just say that the team in Iowa is amazing?  They are all so helpful and enthusiastic.  One of my coordinators said the phrase, "I just love my job!"  This is such a confirmation that waiting for Iowa was the right choice.

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